What One Special Mother Did to Bring the World Alive for Her Blind Daughter

What One Special Mother Did to Bring the World Alive for Her Blind Daughter

What sort of people do we want to be?
What sort of people do we want to raise?

The answer to both these questions came to me when Tanya Savva approached me with her children’s book, The Adventures of Kenzie-Moo.

I created Little Wings Books, the children’s book imprint of Joanne Fedler Media if only to publish this gem of a book.

Tanya’s life changed when her daughter Mackenzie was born blind and with a range of other physical challenges. As a single mother, she knew there was more to working herself to exhaustion and not having enough time to spend with her daughter.

‘I know she deserved so much more,’ Tanya says.

In 2016 she decided to turn her life around. She packed up their lives, bought a caravan and for five months took Mackenzie all around Queensland, Australia, where they had all kinds of adventures. During this time, Tanya kept a leather-bound journal to capture their experiences and document Mackenzie’s reactions to everything she ‘saw.’

One night she wrote the book from start to finish and found a wonderful artist, Emma Stuart to do the illustrations.

The book asks us to imagine seeing a dolphin, walking through a rainforest, flying in a helicopter and swimming in the ocean without the use of our eyes.

As Kenzie-Moo delights in the sounds and sensations around her, she invites us to explore the world in ways we’ve never experienced before.

‘Next time you’re on an adventure, close your eyes to see.
Sense the world a little differently. Maybe you’ll see it just like me.’

Tanya and Mackenzie

This book is everything a book should be:

It has been written by a remarkable woman about a remarkable child; it’s a testament to the kind of love that makes this world bearable and ridiculously beautiful in the face of overwhelming challenge; and it holds a message that reminds us – no matter our age – to grab life with both hands and do that thing we’ve been wanting to do but have been putting off.

“My daughter isn’t an excuse for why I can’t follow my heart’s desires – she is the reason for why I should.”
Tanya Savva

The Adventures of Kenzie-Moo 5

Please help me to make this book a HUGE success and support this extraordinary mother-daughter duo.

You can do that NOW by purchasing copies of a limited hard-cover edition, signed by Tanya and beautifully packaged (they make outstanding Christmas and Channukah gifts, so you can stock up).

And if the story and illustrations aren’t enough to melt your heart, you will also receive a link to the audio version of the book spoken by Mackenzie (trust me, this kid is something else).

Tanya is in my Masterclass where she is writing a memoir about raising a child with special needs as a single mother, and the choices she’s made to live aligned with her soul purpose, in the face of adversity. She is passionate about empowering women who care for others to create inner freedom and joy no matter their circumstances and runs carer retreats for mothers with children with special needs.

Mackenzie is a magical and confident imp of a girl who continues to triumph through challenges she has faced since birth. She is an exceptional storyteller, horse rider and piano player, and creates joy and laughter wherever she goes with her cheeky and hilarious disposition. A true creative spirit, she shares her unique vision of the world with all those whose lives she touches.

To follow Tanya and Mackenzie’s journey, visit www.tanyasavva.com


If you order your copy now, you will receive a limited edition of The Adventures of Kenzie-Moo in this gorgeous packaging, signed by the author. As a special bonus, you will also receive a link to the audio version of the book spoken by Mackenzie. 

How can you resist?

(What better Christmas or Channukah gift can you think of for a child in your life?)

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How to Love Time with Every Passing Birthday

How to Love Time with Every Passing Birthday

We’re all just walking each other home.

– Ram Dass

 

It’s funny how much we fret about nonsense in the light of Ram Dass’s insight, isn’t it? How different would we behave if we lived each day with that as our premise?

So when the 31st August comes around, I don’t sigh, ‘Oh God, another year…’ and get all coy when people ask me my age.

Let me tell you, I’m happy to eat cake once a year, blow out a gazillion candles and get fussed over by family and friends.

Of course, it’s the job of birthdays to remind us of that ‘cottage of darkness’ (to quote Mary Oliver) that we’re all heading towards. But I’m tired of bemoaning the relentless ticking over of the clock, scheduling of calendars, passing of weeks, months and years and becoming bitchy and depressed about the bodily decrepitude that accompanies it. Sequential time (or ‘chronos‘) is only one limited way of Hourglassunderstanding our lives.

There’s another (far more upbeat) way to think about time – ‘kairos.’ It’s an Ancient Greek word meaning ‘the right, critical or opportune moment.’ It celebrates time vertically as opposed to horizontally. You know those moments – the ones that resonate beyond the period they occupy, the ones that ‘stay’ in and with us, even as days move relentlessly through us (that first kiss in the rain; when you heard your daughter sing for the first time; the time he held the moon in his hand for you; the moment you realised, ‘he loves me…’)

Joanne Fedler

Joanne Fedler

Author, writing mentor, retreat leader. I’m an internationally bestselling author of nine books, inspirational speaker and writing mentor. I’ve had books published in just about every genre- fiction, non-fiction, self-help, memoir – by some of the top publishing houses in the world. My books have sold over 650 000 copies and have been translated in a range of languages. Two of my books have been #1 Amazon bestsellers, and at one point the German edition of Secret Mothers’ Business outsold Harry Potter- crazy, right?

Birthdays can be tiresome expressions of more time passing, or we can tune into them as timeless, blessed outposts marking our journey home. The best way I know how is to ritualize these days by waking to see the sun rise, dunking my shivery bones in the ocean and giving money to causes I care about. I drop all work. I let the day have me all to itself.

Birthdays pull me into the confessional of big soul questions like: Is my life meaningful? Am I happy? Are my relationships fulfilling? Why am I doing what I’m doing? And, if I died now, would my basket of regrets be empty or full? (If we don’t ask them on our birthdays, when do we ask them?)

Sunrise

This year’s birthday prep (which involved a vision board, journalling and a life-scan) clarified for me that I want to:

  • stop buying stuff
  • lie still and flirt with the sky (both the clouds and stars)
  • make love more often, maybe even every day
  • remember what my heart is for and let it do its thing
  • listen to what is calling to me through the noise of email and to-do lists
  • love my body more and more and more, blessed jiggle of flesh
  • do silly things – jigsaw puzzles, indoor rock climbing, vegetable pickling, aerial yoga, kayaking, dancing in my socks and singing One Republic’s ‘I Lived’ as if I were onstage
  • write, and write and write and write (at least one beautiful sentence each day).

Kazantzakis wrote: ‘leave nothing for death to take, nothing but a few bones.’ I love that. We’re here to ‘own every second that this world could give,’ (that’s from ‘I Lived’). As we do this big walk together, let’s try to skid more slowly from hour to hour, to be patient with the surprise we are becoming as we sink more deeply into the discovery of who we’re here to be.

Here’s a little writing exercise if you’re up for it – to nudge you into a bit of a love affair with ‘kairos.’

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Nobody Walks This Earth Alone

Nobody walks this earth alone.

TS Eliot wrote, ‘April is the cruellest month,’ but he got that wrong. It is June.

Yeesh, it was a bad month.

My work threw up one hardcore challenge after the other. I barely had a chance to catch my breath before the next one hit. There were moments when I questioned why I’m doing what I’m doing. It was that bad.

And just when my skin was at its thinnest, my darling cat Tanaka died in my arms after a friendship long, loyal and loving. Letting her go has hurt hard.

Joanne and Tanaka

It’s been every shade of sorrow and adversity. Which makes it sound personal. Of course, nothing is ever personal, unless we make it so. The universe offers us a mirror. Whether we want to look into it, is our choice.

Mary Oliver reminds us that ‘all things are inventions of holiness, some more rascally than others.’ I need this tattooed somewhere visible. Maybe my palm.

I’ve spent the past few weeks doing a soul inventory. Managing our grief requires both discipline and surrender. To see past our own blind spots can cause whiplash. We need strong self-love in the first place to undertake a journey of self-improvement and take responsibility for everything that’s showing up in our lives even when it feels like someone else’s fault. It relies on the bedrock of faith that we are strong enough to walk away from something that ‘doesn’t feel right,’ or acknowledge when we’ve been jerks. It rests on the belief that people will forgive and love us even when we make mistakes.

At times like this, we need help. We need others. We need to know that when we call out ‘I’m drowning, throw ropes, send oxygen, make soup,’ that others are listening and will act.

Sometimes, we need to be rescued.

Joanne Fedler

Joanne Fedler

Author, writing mentor, retreat leader. I’m an internationally bestselling author of nine books, inspirational speaker and writing mentor. I’ve had books published in just about every genre- fiction, non-fiction, self-help, memoir – by some of the top publishing houses in the world. My books have sold over 650 000 copies and have been translated in a range of languages. Two of my books have been #1 Amazon bestsellers, and at one point the German edition of Secret Mothers’ Business outsold Harry Potter- crazy, right?

I was resuscitated by family (daughters who bought flowers and teenage sons who offered ‘Let me cook dinner tonight’); friendships, team members and the community of writers I work with.

We’ve all just witnessed the miraculous rescue of thirteen people from what seemed like inevitable death in flooded caves in Thailand by an international team of expert divers, Navy Seals and doctors. Don’t know about you, but I’m a weepy mess, overcome by this show of solidarity and collective genius. There is literally nothing we cannot achieve as a human race if we pull together.

Caroline Myss in The Anatomy of Your Health, reminds us to stay connected to a life ecosystem: ‘Be part of a group whose collective soul you care about, and with people who notice when you are missing. Nobody walks this earth alone. Find the people you want to grow with – and let them know, “you can count on me.” This is how a human being’s health thrives.’

If you are reading this, I want you to know that you are a huge part of what sustains me.

As a huge thank you, I’m going to be sending a specially designed gift in every monthly newsletter – it will either be a free chapter of a new book; an inspirational infographic; or some other love-attachment to bring you joy.

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I was recently asked by The Excellence Reporter to share my thoughts on what the meaning of life is (you know, that little question). Here’s the short video I recorded in response:

In the coming months, Joanne Fedler Media will be publishing four books – we are SO excited to bring you some brand new authors and share the work of their hearts and lives with you. Soon.

 

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The Catharsis of Writing

The Catharsis of Writing

Beneath the bluest of skies, clouds can gather. This week my clouds collided in a cacophony of noise. Many of us with mental health issues are lured by the seductive whisper of maladaptive coping mechanisms, and traversing darkness can blind the strongest of us to any light ahead. To stay safe and whole I need a way to store emotional pain. It’s taken decades, but I finally have a healthy place to steady me when my soul succumbs to chaos.

I write.

I use words to weave a cloak of self-care. I let the stream of consciousness burn through my fingers. I blog. I share with trusted friends. Write journals. Make notes on my phone. I write anywhere I can. And when I’m done writing, my spirit is a little softer and my heart a little calmer.

Almost half the population of Australia will have a mental health issue (depression, anxiety, substance abuse – to name a few) at some point in their lives. Fifty per cent of us. If you know another human, then statistically speaking, one of you is it. Inner mental turmoil can turn molehills into mountains, and when that happens our emotions and fear can overwhelm while destructive behaviours waltz in to calm the mental disquiet.

But writing out chaos gives it a name – acknowledges the pain. Writing needs no rules, no judgment, no audience. It matters not if you’re a “good” writer. Regurgitating words is an outlet for the whirlpool of noise and once out, there is a lessening of burden. A burden shared is indeed a burden halved.

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About Simone

Crazy hair, solitude seeker, at peace in the natural world, Simone Yemm dedicated over three decades as a professional flautist and teacher. In 2008 she completed a Master’s in Journalism, specialising in editing, and continues to hone her skills as a writer. After a series of crises led to an emotional breakdown, Simone developed a passionate interest in mental health and shares her story to educate and support the wider community. With 25 years of marriage under her belt, she successfully raised three and a half young men and a chocolate-brown Burmese cat. A mean feat never to be underestimated.

www.simonelisa.com

We live in a world where connection to meaningful relationships and pastimes can be superficial. Social media and online activities bring communities and individuals together in the most wonderful of ways, yet we still need connection in the “real” world. We need someone to hear our personal story in all its uncensored glory. Without real connections it’s easy to isolate, and isolation is rarely helpful for mental health issues.

Fortunately, there is a plethora of tools to support us, and we can all find different ways to work through distress. Writing is free, needs few resources, no training, and is available anywhere, anytime. Writing clutches your worst fears – all the problems that haven’t even happened – and puts them down in black and white. Or any colour you choose. It can offer perspective and validation. It gives words to unexplained feelings, unexpressed pain and paralysing fear. Writing clears a little space for the voice of reason to step in and whisper in your ear.

I started writing in a journal as part of my professional support therapies. Some days were so dark I couldn’t form full sentences – I just seeped the anguish through my fingers and let it rest. I read it back later and felt compassion for the girl silently screaming in my mind. That was three years ago. Since then I have written prodigiously. When full sentences can be found, I put my inclination to perfectionism to work, cleaning up text to publish in my blog. Sharing my story sheds the shame. It allows me to tell my deepest, darkest secrets and fears to professional and personal supports without speaking out loud. When my voice has no words, I give it one through writing. Publicly sharing my story brings me a stronger sense of connection to communities of people who understand when I’m suffering. They’ve been there, done that, felt it. They hear my words and feel them too.

I recently experienced a rapid spiral into depression and forgot to write. Chaos swirled. At 3am one morning, I wrote a thousand words of turmoil in a message to a trusted friend. She checked on me, kept me safe, and since then I’ve resumed my writing and the turmoil is settling. Rational thoughts are returning and perspective is coming back. My early morning stream of consciousness was a catharsis of emotional pain. My physical world remains cloudy, but mentally, emotionally, spiritually, I am clearer. I see hope and light.  And I owe that to writing.

 

*If you are experiencing mental health issues and need assistance or someone to talk to, please seek support services in your area. You are not alone and there is help available.*

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When I heard the question, “How do I find my writing voice?” I had this vision of searching my house. Looking behind the cushions on the couch, checking amongst the debris long forgotten in the back of my wardrobe, maybe even turning out the rubbish bin in my desperation. My plaintive cries of, “Voice, where are you?” getting louder and more anguished as my feverish, fruitless search intensified.

I imagined my writing voice as this mystical, elusive, willful creature that I somehow needed to persuade to come and work for me. I believed once I had secured its services all my troubles would be over, writing would become effortless, miracles would rain from the heavens, doors would open and I’d be showered with success. Yet my quest for the writer’s “Holy Grail,” my very own writer’s voice, felt hopeless. I wondered where to turn next. Perhaps I could try someone else’s on for size: “Writing Voice Wanted. Please Apply Within.”

It was in those simple words I’d finally unearthed my answer: apply within. I wasn’t going to find it racing around, asking others for help. It wasn’t lurking out there somewhere, hoping to be noticed. It was inside me waiting to be rediscovered.

It wasn’t even lost – it had just been hiding. Hiding behind all those old fears and doubts that I’d been carrying around. It had disappeared behind that rock I’d stuck in my own way that said, “I have nothing to say that anyone would want to hear.” It shrank to a whisper each time I’d thought, “They know more than I do,” “they are more interesting than I am,” “more qualified,” perhaps even “more important.”

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About Fiona

Fiona MacKay is a freelance writer and wildlife photographer who enjoys sharing her passions for creativity, travel, environmental issues, holistic lifestyles, complementary therapies and wildlife photography through the written word. She is a propagator of trees, flowers, thoughts and ideas and is currently writing her first book – a guide to the palliative care of animals under the guidance of Joanne Fedler.

www.FionaMacKayPhotography.com

Finding your writing voice does require a quest. Not the comical searching down the back of the couch kind, but rather one of quiet internal reflection. Armed with the courage to be vulnerable and the confidence to value yourself and your life, you need to look lovingly and with self-compassion in the mirror. Not giving just a quick glance, but a long hard look.

Your voice is waiting amongst the scars of the life you’ve led. It resonates with all the memories you’ve created, the places you’ve seen, the things and people you’ve loved, and lost, all the pain you’ve survived, every time you’ve laughed or cried and every ounce of wisdom you have accumulated. It vibrates to the unique tone, pitch and harmony of every thought, emotion, memory and experience you’ve ever had.

It is simply you on the page. Not trying to be anyone else. Not trying to impress anybody. Just you, unfettered, unadulterated, free and true.

You need to give yourself permission to use it. Not the voice that whispers what you think people want to hear. The voice that rises from your heart imbued with the passionate imprint of your life, carrying the echo of all your pain and all your love.

It’s time for you to own your life and your very own beautiful, powerful voice.

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How many times must we restart something before we get it “right”?

The thought that I will lose momentum again is an avatar of fear. She stacks plates in the cupboard while I wash dishes that can wait, she sulks beside me when I sink into the couch to watch television, and she lurks over me, analyzing every word I scrawl or type. She has been with me almost my whole life and I know she isn’t going anywhere. She has always been the bully who will knock over the tower of blocks only I have the vision and dedication to build.

But blocks can be restacked. The pieces can be picked up as many times as is necessary and reconfigured to create more inventive and sustainable structures.

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About Jennifer

Jennifer wrote her first poem at the age of six, and she has been involved in the world of words as an editor, a blogger, and an article writer. She is published in and shortlisted for a growing number of local, national, and international electronic and print publications.Most recently she had an essay, titled Bairnlorn, appear in the Globe & Mail, placed first in the My City, My Words poetry contest, and wrote and handcrafted a board book for her son.

She also tells terrible jokes.

While doubt will probably always threaten to topple my undertakings, I have discovered an interesting way to stand against this shadow-self. I write about her. I have started to compose pieces that delve into my feelings about the act of writing itself, and it has opened up a path into my own process that I could never have discovered without the unwanted companionship of disquiet.

I have begun to view her as a character.

In engaging my own sense of levity and curiosity about my fear, I have made her less powerful. I see her now as flawed and complex, a composition of erroneous assumptions and misguided efforts to protect. It doesn’t mean that when she flattens my work that it doesn’t hurt, but I better understand her attempts to intimidate and support inactivity. I can turn my back on her and walk away when she is being belligerent or enabling. And I can be empathetic of her struggle… while simultaneously plotting to kill her off in the sequel.

Realizing that I have an actual relationship with my craft, and that I can identify my anxieties, confidences, and quirks as the cast of a story, has created a new space into which I can write. I no longer feel outside of what I am doing, but rather I participate actively in all the arguments, harmonies, and silences that surround my work.

It turns out that I am not singing some precarious melody. I am the anthem. I am the story.

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Happy International Women's Day. I hope you're going to make some time for yourself today - to listen in to your heart, and to reconnect with the life inside you that is only yours. Maybe do something kind for your body. Give it a compliment. A massage. A dunk in the...

When Mothers Kill

Mrs. Large is an elephant and the mother of Laura, Lester and baby who tries – without success - to have a bath with a tray of tea and some scones away from her children. Five Minutes Peace by Jill Murphy is the bedtime book I always choose to read to my kids when it...

Why Writing about Your Experience Is Not Narcissistic

As writers, we sometimes shirk away from writing about our own particularities because we don't want to be ‘narcissistic,’ or ‘self-involved.’ It's a good point. Our internal musings about our childhood, illness, divorce or particular form of heartache may bore and...